Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives. But why is this important?  If rare diseases are rare, why should we be interested, make time to care, learn more or more importantly take action?

Critically, although we define individual rare diseases as rare, collectively there are around 7,000 which means that 1 in 17 of us will suffer from a rare disease in our lifetimes, equivalent to 7% of the population.

Continue reading “Why we need to look at rare diseases in a different way”